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End of Life Heart and Lung Failure Marfan Medical Mourning Snippets and Vignettes Visually Impaired Writing

I am Stuck

A Screen shot from Trenna's iPad
A screen shot from Trenna’s iPad

[Note from Greg: I don’t think for one moment that when Trenna prepared this piece on her iPad that she just added a nice picture to the top. I think the fact that she is standing on an island (Staten), with the rest of the world behind her (New York City) is entirely deliberate and relevant.]

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Carer Collected Wisdom Coping Marfan Medical Travel

Marfan and Other Chronic Conditions – Things That Worked for Trenna

by Greg

A Need to Cope with Life

This is a list of some of the strategies Trenna adopted to try to cope with life and her many medical issues. She didn’t have a specific list of these items. This is just the things I remember us trying.

I’m expecting (hoping?) that this post might be helpful to people living with chronic disease, and their carers. But of course everyone’s situation is different.

For most of her life she was … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna”