Categories
2010s Coping Heart and Lung Failure Marfan Medical

“SCOLIOSIS BODY MIGRAINES” 

Introduction by Greg and then Trenna’s words, with only a little editing

The inverted commas in the title were in the original document. A “Body Migraine” is a Trennaism. In this case the term she used to describe this set of symptoms.

Introduction

This is another post that I am including mainly for the benefit of those with musculoskeletal issues. That of course incudes those, like Trenna, with Marfan Syndrome.

Trenna’s words below were on her iPad. It looks like … Read the rest ... ““SCOLIOSIS BODY MIGRAINES” ”

Categories
2010s Coping iPad Knowledge Marfan Medical

To Feel Able

Weekday Routine 2016 and 2017

Intro by Greg, and then Trenna

Among the documents on Trenna’s iPad there are two called “Weekly Routine”. One is labelled “2016” and the other “2017”.

It is actually not quite as pernickety as it seems.

In this post I will reproduce both of them. In them Trenna goes into immense detail abut times she intends doing things and what looks like a very strict routine.

It is actually not quite as pernickety as it … Read the rest ... “To Feel Able”

Categories
2010s Carer End of Life Heart and Lung Failure Medical Snippets and Vignettes

A Trip to the Psychiatrist

By Greg & Trenna

This wasn’t the first time that it was suggested that Trenna might need to see a psychiatrist. See also this anecdote from when she was a child.

The recent post “The Key to Happiness and Fulfilment” got me thinking of a visit to Trenna’s cardiologist, which ended up turning into a trip to see a psychiatrist. Here’s what happened…..

It was Monday, 12 June 2017 at 9:30am (actually from about this point we never made appointments, … Read the rest ... “A Trip to the Psychiatrist”

Categories
2010s Collected Wisdom Coping iPad Knowledge Snippets and Vignettes

The Key to Happiness and Fulfilment

Intro by Greg, Wisdom by Trenna

Here is another pearl from Trenna’s iPad. It looks like she started it on 27 April 2016 (at 10:31 am) but then didn’t edit it again until 31 May 2017. (How nerdy is that detail I’ve given you?!)

PLEASE NOTE: It is a 3 page document from the iPad, if your browser is only showing one page you may need to click on the link or the Download button.

As I write this I … Read the rest ... “The Key to Happiness and Fulfilment”

Categories
2010s Carer Collected Wisdom Coping iPad Knowledge Love and Marriage Marfan

Living With Your Spouse

The iPad Documents – Collected and Created Knowledge From Trenna

This post is a simple one, but to Trenna and I the following was important.

In May 2017 Trenna wrote the PDF document that appears below. The formatting was as she wrote it on her iPad. The font size she used was large to help her read it.

The distinctive colour was to help her find it on her iPad when the document was minimised.

As far as I can … Read the rest ... “Living With Your Spouse”