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2010s Coping iPad Knowledge Marfan Medical Medical Records Visually Impaired

Blepharitis & Conjunctivitis

Medical Notes From Trenna’s iPad

Here is a page Trenna made about two eye problems she encountered.

Everyone is welcome to read the post, but it doesn’t contain any funny or poignant stories. I’m just trying to pass on some information Trenna accumulated in case it is of use to anyone else.

Maybe in the future it has historical benefit as well. Who knows!

In case you are wondering, according to the Mayo Clinic (who Trenna trusted for this sort Read the rest ... “Blepharitis & Conjunctivitis”

Categories
2010s Household Tips Snippets and Vignettes Visually Impaired

A Rug for Jack and Jade

by Trenna and Greg

To fully understand this post you are going to need to access the iPad document I have embedded above.

You won’t need to know much about crocheting, and you don’t need to read the whole document, provided you scan through the lot.

So what am I talking about?

Well. Some time, probably in September 2014 Trenna and I received the wonderful news that one of our 9 nieces was pregnant – congratulations again Jade.

Trenna decided … Read the rest ... “A Rug for Jack and Jade”

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Coping Heart and Lung Failure Marfan Medical Medical Records Visually Impaired

Introduction to The Medical Records

Introduction by Greg, all the records are Trenna’s work unless specified

I’ve tossed around in my head what to do with Trenna’s extensive medical records.

They mainly comprise the detailed notes she would make at the end of almost all consultations with medical professionals. At first she hand wrote them on A5 pieces of paper (actually hand written on the back of bits of paper that otherwise would have ended in the recycling bin).

Later she recorded them on her … Read the rest ... “Introduction to The Medical Records”

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Carer Coping Heart and Lung Failure Marfan Medical Snippets and Vignettes Visually Impaired

Things That Worked for Trenna -Part 2

Strategies and tips used by someone with a degenerative condition and chronic illness

By Greg

Things Trenna and I Tried, That Worked

in no particular order

This is the second part of this list. For the first part please click here.

I’m already working on part 3 as things we have done in the past pop randomly into my scone.

Coloured Lever Arch Files (although there are electronic filing alternatives now)

As you will find out by going through this … Read the rest ... “Things That Worked for Trenna -Part 2”

Categories
1960s 1970s Craig House Kitchen Tapes Visually Impaired

Number Nine, Number Nine…

This Kitchen Tape Recorded on 21 April 2018

GM:  OK, today is Saturday, 21st of April, 2018 and I’m with Trenna Mahney.  Tren, you were going to tell us a bit more about Craig House, I think? 

THM:  Alright.  The main house – I was talking about the kitchen and the back enclosed…  well, I guess, in a way it was a bit of a pantry, where it had the fruit cupboard, and all that. 

Sleeping Arrangements

That leads into … Read the rest ... “Number Nine, Number Nine…”

Categories
1960s Craig House Kitchen Tapes Marfan Mofflyn Homes Visually Impaired

The Kitchen Tapes # 6

Recorded on 15 April 2018

Primary School Days

GM:  OK, today is Sunday, the 15th of April 2018, I’m with Trenna Mahney, and she’s going to continue telling us about her memories of her past.  Tren, last time we were talking with you you were on your way to school …

THM:  I was talking about that slightly in the future, when Helen had arrived, I think. But I should go back to when I first came to Craig … Read the rest ... “The Kitchen Tapes # 6”

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End of Life Heart and Lung Failure Marfan Medical Mourning Snippets and Vignettes Visually Impaired Writing

I am Stuck

A Screen shot from Trenna's iPad
A screen shot from Trenna’s iPad

[Note from Greg: I don’t think for one moment that when Trenna prepared this piece on her iPad that she just added a nice picture to the top. I think the fact that she is standing on an island (Staten), with the rest of the world behind her (New York City) is entirely deliberate and relevant.]

Categories
2010s Coping iPad Knowledge Marfan Medical Music Visually Impaired Writing

Moshing With Black Sabbath!

By Greg and Trenna

Reliving the Experience

Looking through Trenna’s iPad I came across the document she wrote to review/record the Black Sabbath concert we went to along with a friend, Adrian. It was the first time I had read this piece since 2016.

It immediately brought back memories of a really fab night. I also found some of the turns of phase pretty entertaining.

I will put her writing below, in the main body of this post but also … Read the rest ... “Moshing With Black Sabbath!”

Categories
2010s Coping Love and Marriage Marfan Medical Travel Visually Impaired

The Wellington Earthquake

By Greg

Business Class Travel – It’s Not For Everyone

In November 2016 my then employer, Advocare Inc, gave me the opportunity to go to a mediation conference in Wellington, New Zealand.

Travel was becoming increasingly difficult for Trenna. Her eyesight was very bad and her pain management was not going well. We knew that the long flight from Perth in Western Australia to Auckland and then down to Wellington would take its toll.

On the other hand it really … Read the rest ... “The Wellington Earthquake”

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2010s Carer Coping Heart and Lung Failure iPad Knowledge Love and Marriage Marfan Medical Visually Impaired

The Recce-Vite

A little bit of fun is better than none

by Greg

Trenna became aware at some point around 2010 that she was getting out of the house less and less – it was often pretty hard. But she didn’t want to lose touch with the city in which she lived.  And she wanted some recreation and a change of scenery.

So, she invented the “Recce-Vite”. She was using French words to describe a quick look around somewhere.

A recce-vite was … Read the rest ... “The Recce-Vite”