Categories
2010s Coping Heart and Lung Failure Marfan Medical

“SCOLIOSIS BODY MIGRAINES” 

Introduction by Greg and then Trenna’s words, with only a little editing

The inverted commas in the title were in the original document. A “Body Migraine” is a Trennaism. In this case the term she used to describe this set of symptoms.

Introduction

This is another post that I am including mainly for the benefit of those with musculoskeletal issues. That of course incudes those, like Trenna, with Marfan Syndrome.

Trenna’s words below were on her iPad. It looks like … Read the rest ... ““SCOLIOSIS BODY MIGRAINES” ”

Categories
2010s Heart and Lung Failure Marfan Medical Medical Records Writing

Medical Records – Cardiology No. 3

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna in this series:
AF – Atrial … Read the rest ... “Medical Records – Cardiology No. 3”

Categories
2010s Heart and Lung Failure Marfan Medical Medical Records

Medical Records – Cardiology No. 2

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna in this series:
AF – Atrial … Read the rest ... “Medical Records – Cardiology No. 2”

Categories
Heart and Lung Failure Marfan Medical Medical Records

Medical Records – Cardiology No. 1

And Cardioversion

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna in this series:
AF … Read the rest ... “Medical Records – Cardiology No. 1”

Categories
Coping Heart and Lung Failure Marfan Medical Medical Records Visually Impaired

Introduction to The Medical Records

Introduction by Greg, all the records are Trenna’s work unless specified

I’ve tossed around in my head what to do with Trenna’s extensive medical records.

They mainly comprise the detailed notes she would make at the end of almost all consultations with medical professionals. At first she hand wrote them on A5 pieces of paper (actually hand written on the back of bits of paper that otherwise would have ended in the recycling bin).

Later she recorded them on her … Read the rest ... “Introduction to The Medical Records”

Categories
2010s Carer End of Life Heart and Lung Failure Medical Snippets and Vignettes

A Trip to the Psychiatrist

By Greg & Trenna

This wasn’t the first time that it was suggested that Trenna might need to see a psychiatrist. See also this anecdote from when she was a child.

The recent post “The Key to Happiness and Fulfilment” got me thinking of a visit to Trenna’s cardiologist, which ended up turning into a trip to see a psychiatrist. Here’s what happened…..

It was Monday, 12 June 2017 at 9:30am (actually from about this point we never made appointments, … Read the rest ... “A Trip to the Psychiatrist”

Categories
Carer Coping Heart and Lung Failure Marfan Medical Snippets and Vignettes Visually Impaired

Things That Worked for Trenna -Part 2

Strategies and tips used by someone with a degenerative condition and chronic illness

By Greg

Things Trenna and I Tried, That Worked

in no particular order

This is the second part of this list. For the first part please click here.

I’m already working on part 3 as things we have done in the past pop randomly into my scone.

Coloured Lever Arch Files (although there are electronic filing alternatives now)

As you will find out by going through this … Read the rest ... “Things That Worked for Trenna -Part 2”

Categories
End of Life Heart and Lung Failure Marfan Medical Mourning Snippets and Vignettes Visually Impaired Writing

I am Stuck

A Screen shot from Trenna's iPad
A screen shot from Trenna’s iPad

[Note from Greg: I don’t think for one moment that when Trenna prepared this piece on her iPad that she just added a nice picture to the top. I think the fact that she is standing on an island (Staten), with the rest of the world behind her (New York City) is entirely deliberate and relevant.]

Categories
2010s Carer Coping Heart and Lung Failure iPad Knowledge Love and Marriage Marfan Medical Visually Impaired

The Recce-Vite

A little bit of fun is better than none

by Greg

Trenna became aware at some point around 2010 that she was getting out of the house less and less – it was often pretty hard. But she didn’t want to lose touch with the city in which she lived.  And she wanted some recreation and a change of scenery.

So, she invented the “Recce-Vite”. She was using French words to describe a quick look around somewhere.

A recce-vite was … Read the rest ... “The Recce-Vite”