By Greg then Trenna
This post comes from another document on Trenna’s well organised (of course) iPad.
All I’ve done is cut and paste the original document into the main body of this post. I’ve also inserted a PDF of the original document as it appears on the iPad.
I hope you find it either useful or interesting – or both.
Greg
Consider Heat or Ice.
Heat helps … Read the rest ... “First Aid & Home Remedies”
by Greg
I’m a Justice of the Peace in Western Australia and I volunteer at a signing centre. People come in without an appointment and ask me to witness signatures or to certify various documents.
I’m only rostered on once a month so it isn’t particularly onerous.
The other day, a guy who was probably in his early seventies, came in to ask me to certify some documents for him. He told me straight away that his wife … Read the rest ... “Grief – What I’ve Learnt in the First 18 Months”
By Greg
Recently I was reading a Marfan Syndrome Facebook Group post. The person was asking about people’s different experiences with pain killers. A really important issue for Marfans.
I gave a reply which, among other things mentioned medicinal cannabis (MC). I then got some other questions about our Australian experience.
This post is based on my reply to them.
If you aren’t in the market for MC there is … Read the rest ... “Medicinal Cannabis”
Introduction by Greg and then Trenna’s words, with only a little editing
The inverted commas in the title were in the original document. A “Body Migraine” is a Trennaism. In this case the term she used to describe this set of symptoms.
This is another post that I am including mainly for the benefit of those with musculoskeletal issues. That of course incudes those, like Trenna, with Marfan Syndrome.
Trenna’s words below were on her iPad. It looks like … Read the rest ... ““SCOLIOSIS BODY MIGRAINES” ”
Here is a page Trenna made about two eye problems she encountered.
Everyone is welcome to read the post, but it doesn’t contain any funny or poignant stories. I’m just trying to pass on some information Trenna accumulated in case it is of use to anyone else.
Maybe in the future it has historical benefit as well. Who knows!
In case you are wondering, according to the Mayo Clinic (who Trenna trusted for this sort … Read the rest ... “Blepharitis & Conjunctivitis”
Among the documents on Trenna’s iPad there are two called “Weekly Routine”. One is labelled “2016” and the other “2017”.
It is actually not quite as pernickety as it seems.
In this post I will reproduce both of them. In them Trenna goes into immense detail abut times she intends doing things and what looks like a very strict routine.
It is actually not quite as pernickety as it … Read the rest ... “To Feel Able”
I’ve tossed around in my head what to do with Trenna’s extensive medical records.
They mainly comprise the detailed notes she would make at the end of almost all consultations with medical professionals. At first she hand wrote them on A5 pieces of paper (actually hand written on the back of bits of paper that otherwise would have ended in the recycling bin).
Later she recorded them on her … Read the rest ... “Introduction to The Medical Records”
Here is another pearl from Trenna’s iPad. It looks like she started it on 27 April 2016 (at 10:31 am) but then didn’t edit it again until 31 May 2017. (How nerdy is that detail I’ve given you?!)
PLEASE NOTE: It is a 3 page document from the iPad, if your browser is only showing one page you may need to click on the link or the Download button.
As I write this I … Read the rest ... “The Key to Happiness and Fulfilment”
By Greg
This is the second part of this list. For the first part please click here.
I’m already working on part 3 as things we have done in the past pop randomly into my scone.
As you will find out by going through this … Read the rest ... “Things That Worked for Trenna -Part 2”
Looking through Trenna’s iPad I came across the document she wrote to review/record the Black Sabbath concert we went to along with a friend, Adrian. It was the first time I had read this piece since 2016.
It immediately brought back memories of a really fab night. I also found some of the turns of phase pretty entertaining.
I will put her writing below, in the main body of this post but also … Read the rest ... “Moshing With Black Sabbath!”
by Greg
This is a list of some of the strategies Trenna adopted to try to cope with life and her many medical issues. She didn’t have a specific list of these items. This is just the things I remember us trying.
I’m expecting (hoping?) that this post might be helpful to people living with chronic disease, and their carers. But of course everyone’s situation is different.
For most of her life she was … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna”
In November 2016 my then employer, Advocare Inc, gave me the opportunity to go to a mediation conference in Wellington, New Zealand.
Travel was becoming increasingly difficult for Trenna. Her eyesight was very bad and her pain management was not going well. We knew that the long flight from Perth in Western Australia to Auckland and then down to Wellington would take its toll.
On the other hand it really … Read the rest ... “The Wellington Earthquake”
Trenna became aware at some point around 2010 that she was getting out of the house less and less – it was often pretty hard. But she didn’t want to lose touch with the city in which she lived. And she wanted some recreation and a change of scenery.
So, she invented the “Recce-Vite”. She was using French words to describe a quick look around somewhere.
A recce-vite was … Read the rest ... “The Recce-Vite”
This post is a simple one, but to Trenna and I the following was important.
In May 2017 Trenna wrote the PDF document that appears below. The formatting was as she wrote it on her iPad. The font size she used was large to help her read it.
The distinctive colour was to help her find it on her iPad when the document was minimised.
As far as I can … Read the rest ... “Living With Your Spouse”