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2010s Carer End of Life Heart and Lung Failure Medical Snippets and Vignettes

A Trip to the Psychiatrist

By Greg & Trenna

This wasn’t the first time that it was suggested that Trenna might need to see a psychiatrist. See also this anecdote from when she was a child.

The recent post “The Key to Happiness and Fulfilment” got me thinking of a visit to Trenna’s cardiologist, which ended up turning into a trip to see a psychiatrist. Here’s what happened…..

It was Monday, 12 June 2017 at 9:30am (actually from about this point we never made appointments, … Read the rest ... “A Trip to the Psychiatrist”

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Carer Coping Heart and Lung Failure Marfan Medical Snippets and Vignettes Visually Impaired

Things That Worked for Trenna -Part 2

Strategies and tips used by someone with a degenerative condition and chronic illness

By Greg

Things Trenna and I Tried, That Worked

in no particular order

This is the second part of this list. For the first part please click here.

I’m already working on part 3 as things we have done in the past pop randomly into my scone.

Coloured Lever Arch Files (although there are electronic filing alternatives now)

As you will find out by going through this … Read the rest ... “Things That Worked for Trenna -Part 2”

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2020 Carer End of Life Eulogy Grief Marfan Medical Mourning

Eulogy Part 2

A Celebration of Trenna’s Life  –  15 January 2021

Below is the the eulogy delivered by Trenna’s oldest sister, Nancy Seckington-Baker at the celebration of Trenna’s life.

Eulogy

Greg has shared his story of Tren’s story. He has stressed I have 5 minutes.

We have endless, wonderful stories of our sister Trenna.  

A truly life WELL LIVED.

However those stories are for another time and place.

I am here to say how incredibly thankful and grateful that we  have … Read the rest ... “Eulogy Part 2”

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Carer Collected Wisdom Coping Marfan Medical Travel

Marfan and Other Chronic Conditions – Things That Worked for Trenna

by Greg

A Need to Cope with Life

This is a list of some of the strategies Trenna adopted to try to cope with life and her many medical issues. She didn’t have a specific list of these items. This is just the things I remember us trying.

I’m expecting (hoping?) that this post might be helpful to people living with chronic disease, and their carers. But of course everyone’s situation is different.

For most of her life she was … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna”

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2010s Carer Coping Heart and Lung Failure iPad Knowledge Love and Marriage Marfan Medical Visually Impaired

The Recce-Vite

A little bit of fun is better than none

by Greg

Trenna became aware at some point around 2010 that she was getting out of the house less and less – it was often pretty hard. But she didn’t want to lose touch with the city in which she lived.  And she wanted some recreation and a change of scenery.

So, she invented the “Recce-Vite”. She was using French words to describe a quick look around somewhere.

A recce-vite was … Read the rest ... “The Recce-Vite”

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2010s Carer Collected Wisdom Coping iPad Knowledge Love and Marriage Marfan

Living With Your Spouse

The iPad Documents – Collected and Created Knowledge From Trenna

This post is a simple one, but to Trenna and I the following was important.

In May 2017 Trenna wrote the PDF document that appears below. The formatting was as she wrote it on her iPad. The font size she used was large to help her read it.

The distinctive colour was to help her find it on her iPad when the document was minimised.

As far as I can … Read the rest ... “Living With Your Spouse”