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2010s 2020 Carer Coping Health and Medicine Heart and Lung Failure Love and Marriage Marfan Medical Visually Impaired

Carer things that worked for Greg – the good, the bad and the ugly

By Greg

Being a carer can be like being on a roller coaster, it can be fun, and thrilling, and downright scary. Sometimes it’s all those things at once. And once you are on it it can be very hard to get off. But then again, sometimes you don’t want to get off, you just want it to go on and on as long as possible.

In this Post I will try to pass on some of my experience gained … Read the rest ... “Carer things that worked for Greg – the good, the bad and the ugly”

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2020 Carer End of Life Eulogy Grief Marfan Medical Mourning

Eulogy Part 2

A Celebration of Trenna’s Life  –  15 January 2021

Below is the the eulogy delivered by Trenna’s oldest sister, Nancy Seckington-Baker at the celebration of Trenna’s life.

Eulogy

Greg has shared his story of Tren’s story. He has stressed I have 5 minutes.

We have endless, wonderful stories of our sister Trenna.  

A truly life WELL LIVED.

However those stories are for another time and place.

I am here to say how incredibly thankful and grateful that we  have … Read the rest ... “Eulogy Part 2”

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Carer Collected Wisdom Coping Featured Marfan Medical Travel

Marfan and Other Chronic Conditions – Things That Worked for Trenna

by Greg

A Need to Cope with Life

This is a list of some of the strategies Trenna adopted to try to cope with life and her many medical issues. She didn’t have a specific list of these items. This is just the things I remember us trying.

I’m expecting (hoping?) that this post might be helpful to people living with chronic disease, and their carers. But of course everyone’s situation is different.

For most of her life she was … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna”