By Greg
Being a carer can be like being on a roller coaster, it can be fun, and thrilling, and downright scary. Sometimes it’s all those things at once. And once you are on it it can be very hard to get off. But then again, sometimes you don’t want to get off, you just want it to go on and on as long as possible.
In this Post I will try to pass on some of my experience gained … Read the rest ... “Carer things that worked for Greg – the good, the bad and the ugly”
[Note from Greg: I don’t think for one moment that when Trenna prepared this piece on her iPad that she just added a nice picture to the top. I think the fact that she is standing on an island (Staten), with the rest of the world behind her (New York City) is entirely deliberate and relevant.]
by Greg
This is a list of some of the strategies Trenna adopted to try to cope with life and her many medical issues. She didn’t have a specific list of these items. This is just the things I remember us trying.
I’m expecting (hoping?) that this post might be helpful to people living with chronic disease, and their carers. But of course everyone’s situation is different.
For most of her life she was … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna”