Pain relief and the hope of maintaining some sort of body condition were the two main motives for Trenna doing exercises.
When she was able she would walk and exercise daily, and she was very disciplined at it. In the last two years of her life it was very hard to do much physical exercise at all, and I think she quietly grieved … Read the rest ... “Trenna’s Marfan Exercises”
Introduction by Greg and then Trenna’s words, with only a little editing
The inverted commas in the title were in the original document. A “Body Migraine” is a Trennaism. In this case the term she used to describe this set of symptoms.
This is another post that I am including mainly for the benefit of those with musculoskeletal issues. That of course incudes those, like Trenna, with Marfan Syndrome.
Trenna’s words below were on her iPad. It looks like … Read the rest ... ““SCOLIOSIS BODY MIGRAINES” ”
Among the documents on Trenna’s iPad there are two called “Weekly Routine”. One is labelled “2016” and the other “2017”.
It is actually not quite as pernickety as it seems.
In this post I will reproduce both of them. In them Trenna goes into immense detail about times she intends doing things and what looks like a very strict routine.
It is actually not quite as pernickety as it … Read the rest ... “To Feel Able”
This wasn’t the first time that it was suggested that Trenna might need to see a psychiatrist. See also this anecdote from when she was a child.
The recent post “The Key to Happiness and Fulfilment” got me thinking of a visit to Trenna’s cardiologist, which ended up turning into a trip to see a psychiatrist. Here’s what happened…..
It was Monday, 12 June 2017 at 9:30am (actually from about this point we never made appointments, … Read the rest ... “A Trip to the Psychiatrist”
Here is another pearl from Trenna’s iPad. It looks like she started it on 27 April 2016 (at 10:31 am) but then didn’t edit it again until 31 May 2017. (How nerdy is that detail I’ve given you?!)
PLEASE NOTE: It is a 3 page document from the iPad, if your browser is only showing one page you may need to click on the link or the Download button.
As I write this I … Read the rest ... “The Key to Happiness and Fulfilment”
This post is a simple one, but to Trenna and I the following was important.
In May 2017 Trenna wrote the PDF document that appears below. The formatting was as she wrote it on her iPad. The font size she used was large to help her read it.
The distinctive colour was to help her find it on her iPad when the document was minimised.
As far as I can … Read the rest ... “Living With Your Spouse”