Category: Coping

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Carer Collected Wisdom Coping Featured Marfan Medical Travel

Marfan and Other Chronic Conditions – Things That Worked for Trenna

Trenna in Japan
"I had that one, Yum!" - Tokyo 1 April 2015

by Greg

A Need to Cope with Life

This is a list of some of the strategies Trenna adopted to try to cope with life and her many medical issues. She didn’t have a specific list of these items. This is just the things I remember us trying.

I’m expecting (hoping?) that this post might be helpful to people living with chronic disease, and their carers. But of course everyone’s situation is different.

For most of her life she was … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna”

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2010s Coping Featured Love and Marriage Marfan Medical Travel Visually Impaired

The Wellington Earthquake

Shop mannequin fallen over
The earthquake was hair raising. A shop near our hotel the morning after the earthquake.

By Greg

Business Class Travel – It’s Not For Everyone

In November 2016 my then employer, Advocare Inc, gave me the opportunity to go to a mediation conference in Wellington, New Zealand.

Travel was becoming increasingly difficult for Trenna. Her eyesight was very bad and her pain management was not going well. We knew that the long flight from Perth in Western Australia to Auckland and then down to Wellington would take its toll.

On the other hand it really … Read the rest ... “The Wellington Earthquake”

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2010s Carer Coping Heart and Lung Failure iPad Knowledge Love and Marriage Marfan Medical Visually Impaired

The Recce-Vite

Trenna at an art gallery
"Freo Arts Centre - Tired Tren, Poster & Drum Trio" 3 August 2013 - a very enjoyable recce-vite

A little bit of fun is better than none

by Greg

Trenna became aware at some point around 2010 that she was getting out of the house less and less – it was often pretty hard. But she didn’t want to lose touch with the city in which she lived.  And she wanted some recreation and a change of scenery.

So, she invented the “Recce-Vite”. She was using French words to describe a quick look around somewhere.

A recce-vite was … Read the rest ... “The Recce-Vite”

Categories
2010s Carer Collected Wisdom Coping Featured iPad Knowledge Love and Marriage Marfan

Living With Your Spouse

Greg and Trenna in front of masses of love padlocks
Prague 28 May 2012. There must be a lot of keys in that river.

The iPad Documents – Collected and Created Knowledge From Trenna

This post is a simple one, but to Trenna and I the following was important.

In May 2017 Trenna wrote the PDF document that appears below. The formatting was as she wrote it on her iPad. The font size she used was large to help her read it.

The distinctive colour was to help her find it on her iPad when the document was minimised.

As far as I can … Read the rest ... “Living With Your Spouse”