Categories
2010s 2020 Collected Wisdom Coping Featured Health and Medicine Marfan Medical

Marfan Weight Gain

Advice Trenna Got on How to Put Weight ON

Regular readers will know this, but…. although I mention several specific brands in this post I do NOT get any financial or other benefit from them. I name them just to help you understand what I’m talking about.

If you find this post useful or interesting you might want to check out three other posts: Marfan and Other Chronic Conditions – Things That Worked for Trenna; Things That Worked for Read the rest ... “Marfan Weight Gain”

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1990s 2000s 2010s Carer Collected Wisdom Coping Health and Medicine Heart and Lung Failure Medical Snippets and Vignettes Visually Impaired

Marfan and Other Chronic Conditions – Things That Worked for Trenna – Part 3

Coping with Marfan Syndrome, Heart & Lung Failure, Visual Impairment, Chronic Pain and a Few Other Problems

By Greg

If you find this post useful or interesting you might want to check out two other posts: Marfan and Other Chronic Conditions – Things That Worked for Trenna; and Things That Worked for Trenna -Part 2.

As the name suggests yet another instalment in a series of posts that tell the things Trenna tried in an effort to make … Read the rest ... “Marfan and Other Chronic Conditions – Things That Worked for Trenna – Part 3”

Categories
2010s Health and Medicine Heart and Lung Failure Marfan Medical Medical Records Writing

Medical Records – Cardiology No. 6

The Last Three Cardioversions

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna in this … Read the rest ... “Medical Records – Cardiology No. 6”

Categories
1990s 2000s 2010s 2020 Menus Snippets and Vignettes Writing

Why You Should Read The Menu Diaries

By Greg

This post relates to the Menu Diaries series.  If you aren’t familiar with the series, a good place to start would be here.

Some Feedback

The other day I was talking to a friend who likes the TrennaMahney.com website.  I asked for some feedback, and this is what she said.

“I love all the stories about what Tren got up to – there’s lots of stuff I didn’t know.  I don’t read those Menu things though… I’m not … Read the rest ... “Why You Should Read The Menu Diaries”

Categories
2010s Collected Wisdom Coping Heart and Lung Failure iPad Knowledge Marfan Medical Snippets and Vignettes

Trenna’s Marfan Exercises

The iPad Documents – Collected and Created Knowledge From Trenna

Intro by Greg, iPad Wisdom From Tren

Pain relief and the hope of maintaining some sort of body condition were the two main motives for Trenna doing exercises.

When she was able she would walk and exercise daily, and she was very disciplined at it. In the last two years of her life it was very hard to do much physical exercise at all, and I think she quietly grieved … Read the rest ... “Trenna’s Marfan Exercises”

Categories
1990s 2010s Menus Visually Impaired

The Menu Diaries No. 12

March 1993

Somerville Movies, PM Keating Re-elected, and the Swimming Pool is on the Way

For an introduction to what these Menu Diary posts are about, please click HERE. And for the reasons why you really should read this series, please click HERE.

Monday, 1 March. Spaghetti Jaffles (closed toasted sandwiches) with lettuce. Hmmm! – that doesn’t sound very typical. I’ve looked in my 1993 work diary and seen that I had the day off from work. I … Read the rest ... “The Menu Diaries No. 12”

Categories
2010s Health and Medicine Medical Medical Records

Medical Records – Cardiology No. 5

Three Cardioversions in Less Than a Month!

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by … Read the rest ... “Medical Records – Cardiology No. 5”

Categories
2010s Featured Music Writing

Soundwave Festival 2013

4 March 2013

By Trenna, with an intro from Greg

Introduction

I had always planned on including this story from Trenna’s iPad. As I read it I can tell that she has done a bit of a download of her brain to get it down in print whilst still fresh in her memory.

I feel sure that she hoped to come back to it in future and elaborate on some of the comments. She either never got around to it, … Read the rest ... “Soundwave Festival 2013”

Categories
2010s Coping Health and Medicine iPad Knowledge Marfan Medical Snippets and Vignettes

First Aid & Home Remedies

By Greg then Trenna

Introduction

This post comes from another document on Trenna’s well organised (of course) iPad.

All I’ve done is cut and paste the original document into the main body of this post. I’ve also inserted a PDF of the original document as it appears on the iPad.

I hope you find it either useful or interesting – or both.

Greg


FIRST AID & HOME REMEDIES

MUSCLE or JOINT PAIN/ INFLAMMATION

Consider Heat or Ice.

Heat helps Read the rest ... “First Aid & Home Remedies”

Categories
2010s Coping Medical

Medicinal Cannabis

By Greg

What This Post is About and Who is it For?

Recently I was reading a Marfan Syndrome Facebook Group post. The person was asking about people’s different experiences with pain killers. A really important issue for Marfans.

I gave a reply which, among other things mentioned medicinal cannabis (MC). I then got some other questions about our Australian experience.

This post is based on my reply to them.

If you aren’t in the market for MC there is … Read the rest ... “Medicinal Cannabis”

Categories
2010s Marfan Medical Medical Records

Medical Records – Cardiology No. 4

Tales of 3 Cardioversions in 2015

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna … Read the rest ... “Medical Records – Cardiology No. 4”

Categories
2000s 2010s Snippets and Vignettes

BABY ZARA HEIRLOOM BLANKET

By Greg, plus Trenna’s iPad document

2007

This story has it’s origin in 2007, or maybe earlier.

In the 2000s Trenna became part of a group of women from around the area – mainly in our street – who had formed a craft group. Trenna hadn’t been much of a craft person, but she was keen to be part of the community.

She had met most of the women before, but because of the group she developed a friendship with … Read the rest ... “BABY ZARA HEIRLOOM BLANKET”

Categories
2010s Coping Heart and Lung Failure Marfan Medical

“SCOLIOSIS BODY MIGRAINES” 

Introduction by Greg and then Trenna’s words, with only a little editing

The inverted commas in the title were in the original document. A “Body Migraine” is a Trennaism. In this case the term she used to describe this set of symptoms.

Introduction

This is another post that I am including mainly for the benefit of those with musculoskeletal issues. That of course incudes those, like Trenna, with Marfan Syndrome.

Trenna’s words below were on her iPad. It looks like … Read the rest ... ““SCOLIOSIS BODY MIGRAINES” ”

Categories
2010s Coping iPad Knowledge Marfan Medical Medical Records Visually Impaired

Blepharitis & Conjunctivitis

Medical Notes From Trenna’s iPad

Here is a page Trenna made about two eye problems she encountered.

Everyone is welcome to read the post, but it doesn’t contain any funny or poignant stories. I’m just trying to pass on some information Trenna accumulated in case it is of use to anyone else.

Maybe in the future it has historical benefit as well. Who knows!

In case you are wondering, according to the Mayo Clinic (who Trenna trusted for this sort Read the rest ... “Blepharitis & Conjunctivitis”

Categories
2010s Collected Wisdom iPad Knowledge Snippets and Vignettes

The Art of Conversation

Wisdom From Trenna’s iPad

This is an item I noticed on Trenna’s iPad and thought I’d share. I knew it was there, and Trenna would remind me of it from time to time.

She was extremely supportive of my career and encouraged me in it. As a result I was involved in a number of professional organisations, and held some senior positions.

She was also supportive of me going to conferences and professional development sessions. Even when it meant I … Read the rest ... “The Art of Conversation”

Categories
2010s Heart and Lung Failure Marfan Medical Medical Records Writing

Medical Records – Cardiology No. 3

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna in this series:
AF – Atrial … Read the rest ... “Medical Records – Cardiology No. 3”

Categories
2010s Coping Featured iPad Knowledge Marfan Medical

To Feel Able

Weekday Routine 2016 and 2017

Intro by Greg, and then Trenna

Among the documents on Trenna’s iPad there are two called “Weekly Routine”. One is labelled “2016” and the other “2017”.

It is actually not quite as pernickety as it seems.

In this post I will reproduce both of them. In them Trenna goes into immense detail about times she intends doing things and what looks like a very strict routine.

It is actually not quite as pernickety as it … Read the rest ... “To Feel Able”

Categories
2010s Heart and Lung Failure Marfan Medical Medical Records

Medical Records – Cardiology No. 2

PLEASE READ THIS FIRST – THIS POST IS NOT MEDICAL ADVICE

The following historical information is for interest only. It should in no way be thought of as medical advice applicable to any other individual. Medical science has moved on, and no two people have the exact same medical circumstances. I hope you find the information interesting, To see the “Introduction” to this series of posts, please click here.

Common abbreviations used by Trenna in this series:
AF – Atrial … Read the rest ... “Medical Records – Cardiology No. 2”

Categories
2010s Household Tips Snippets and Vignettes Visually Impaired

A Rug for Jack and Jade

by Trenna and Greg

To fully understand this post you are going to need to access the iPad document I have embedded above.

You won’t need to know much about crocheting, and you don’t need to read the whole document, provided you scan through the lot.

So what am I talking about?

Well. Some time, probably in September 2014 Trenna and I received the wonderful news that one of our 9 nieces was pregnant – congratulations again Jade.

Trenna decided … Read the rest ... “A Rug for Jack and Jade”

Categories
2010s Carer End of Life Heart and Lung Failure Medical Snippets and Vignettes

A Trip to the Psychiatrist

By Greg & Trenna

This wasn’t the first time that it was suggested that Trenna might need to see a psychiatrist. See also this anecdote from when she was a child.

The recent post “The Key to Happiness and Fulfilment” got me thinking of a visit to Trenna’s cardiologist, which ended up turning into a trip to see a psychiatrist. Here’s what happened…..

It was Monday, 12 June 2017 at 9:30am (actually from about this point we never made appointments, … Read the rest ... “A Trip to the Psychiatrist”